Running Blind Screening

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“Running Blind” is the story of EJ Scott, who set out to run 12 marathons in 12 states in 2012 for charity, and he did them all blindfolded!  EJ suffers from Choroideremia, a hereditary retinal-degenerative disease that causes blindness, and several years ago, EJ was diagnosed as legally blind.

There are nearly 6,000 people in the United States who have Choroideremia.  In EJ’s family alone, his grandfather, brother and two young nephews have the disease, and his mother and sister are carriers of it.  Despite this incredible genetic misfortune, EJ has responded with a positive spirit, and he’s now doing everything in his power to help raise awareness and funding for a treatment or possible cure.  EJ set a lofty goal of raising $12,000 for each race with all of the proceeds benefiting the Choroideremia Research foundation.

EJ is the first to admit that he could have never taken on this challenge without the love and support of his girlfriend,Deborah Ann Woll, most known for her portrayal of Jessica Hamby on HBO’s “True Blood.”  Having originally met online in 2007, the threat of impending blindness has always loomed over EJ and Deborah’s relationship, and yet, this perceived disability has only strengthened their love for one another.

EJ’s journey while running these marathons across the country is an inspiring tale of strength overcoming adversity, and it’s ultimately a reminder that one person can indeed make a difference, no matter the cause.

 

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